26 Oct National Capital Lyme Association
On October 21, 2014, I attended a public panel presentation and discussion about Lyme created by this organization. I learned some especially exciting news: two researchers, Lance Liotta, Md, and his colleague Alessandra Luchini, Ph.D., gave a brief description of a potentially more effective test for Lyme being developed and currently tested at GMU. The clinical trials involve 303 patients being tested for early stage disease with a “SMART” nanotechnology to detect the Bb antigen which is shed in urine only during an active infection. It was developed by the Center for Applied Proteomics and Molecular Medicine by the GMU nanotech team. This has been funded by NIH, and is expected to be much more sensitive than the serology testing currently in use to detect Lyme Disease.
From the GMU website:
Their Mission Statement:
The National Capital Lyme and Tick-Borne Disease Association strives to improve the quality of life for people suffering from Lyme and other Tick-Borne illnesses by offering support and disseminating information that educates and empowers patients, families, healthcare workers, and the community at large about these diseases. We have set forth three strategic objectives.
1. Build Support
We are a network for sharing our personal trials and experiences. We participate with other tick-borne illness organizations through medical conferences and educational seminars.
2. Increase Awareness
We heighten public awareness about Tick-Borne diseases by hosting presentations by healthcare professionals. We work with local and state Health Departments in educating through public service programs and the distribution of printed materials. We gain media attention about tick borne illnesses through tv, radio and newspaper coverage.
3. Find A Cure
We build support for research by educating local, state, federal and international medical and political representatives. We work on both state and federal legislation for Lyme and Tick-Borne Diseases. We raise funds to support Lyme research.
The National Capital Lyme and Tick-Borne Disease Association is led by a member selected Board of Directors. We advance our goals through teamwork and collaboration with other patient and professional groups throughout the country. We seek to regain our health and conquer this disease. We are inclusive and seek participation from all those interested in working toward this goal.
NatCapLyme is a 501(c)(3) tax exempt charity under the Internal Revenue Code.